Day 29

Spoke with Dr Jacob today, we have received some of the results from the lab work they sent to Seattle 3 weeks ago & they are negative! YAY!!! He is going to call Seattle again today to find out if they have looked at the Video EEG. He also took her off of the Dilantin this morning & increased the 3rd medication (Topomax). They are getting more comfortable that they have her seizures under control & Dilantin isn’t a take home drug, so they want to see if Topomax will fill in for it. If that goes well than they will remove the IV. We are really getting closer to discharge. I just hope we don’t have another setback. Dr Jacob also spoke with Dr Jolley (the surgeon) to set up a time for us to meet with him & discuss the G-Tube.