Thursday, September 15, 2005

I really don't know what to say about our little Jake. He is still having 'events' although they appear to not be as frequent. His CO2 level this morning was elevated, but normal for him so they are very happy with that. His oxygen requirements decreased throughout the night to 21-25%, down from 30-33%.

The NCPAP is still doing a great job with keeping his lungs expanded, it's just a mystery as to why he's having these events. Some speculate it's because he gets tired breathing & just decides to stop. Others think it's triggered by seizures, which sometimes it appears so, other times he's completely still & then goes blue.

At this point, we aren't sure what to do. The answer from God just hasn't been given to me yet, so I just keep truckin' along.

Pray that God will provide us a clear path, peace with whatever happens, & strength to continue this journey.

Overall Status: Stable
Visitors: Celeste & Judy, Noni & Papa, Kerry
Dinner Provided By: Celeste

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