I have some GREAT news! Sorry that I haven't written in a few days, I was making sure that the 'good news' kept coming before getting my hopes up! Brianna hasn't had any apnea spells for over 48 hours. She had another MRI yesterday & the blood clot that was originally there, is COMPLETELY GONE! Her brain however has not grown in 3 weeks, so there is some concern there. They tried taking her off of the nasal cannula (oxygen) last night, but she didn’t do very well, so they put her back on at ½ the strength that is was on to see how she handles it.
We are still meeting with the pediatric neurologist from
The best news that I have to tell you at this point is --
If we can get her off of the canula, it looks as though we will be rooming in with Brianna in a room to ourselves Wed night & BRINGING HER HOME ON THURSDAY!!!! She will be coming home with an oxygen tank & a saturation monitor, so that we can monitor her better & provide oxygen when she needs it. She will not have to be on this 24/7, only when she isn’t being watched (sleeping).
Please continue to keep us in your prayers, as the next couple of days are going to be the most important. Stay stable Brianna so that we can bring you home!!
I will keep everyone posted!
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